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APPENDIX A: LETTER OF INFORMED CONSENT
You are being asked to sign on behalf of your dependent to participate in a research study
conducted by graduate student Rajahna Desiree Schneekloth, under the supervision of Principle
Investigator Dr. Andrea Crimmins of the School of Music in Music Therapy at Illinois State
University. The purpose of this study is to compare the effects of live music to recorded music
on the long-term memory of adults diagnosed with middle-stage Alzheimer’s disease. This study
will analyze both the quantitative and qualitative components of the reminiscent responses from
each musical condition.
Why are you being asked?
You have been asked to sign on behalf of your dependent to participate because the dependent
has met the eligibility criteria: born between 1930 to 1950, diagnosed with middle-stage
Alzheimer’s as specified by Sugar Creek Alzheimer’s Care Center program director Patricia
Brady, and does not possess hearing or verbal communication impairments that would prevent
them from engaging with the student music therapist.
Your dependent’s participation in this study is voluntary. They will not be penalized if they
choose to skip parts of the study, not participate, or withdraw from the study at any time. This
study is independent of the services provided by Sugar Creek Alzheimer’s Care Center. The care
and services received by your dependent from Sugar Creek Alzheimer’s Care Center will not be
effected if they choose to skip parts of the study, not participate, or withdraw from the study at
any time.
What would you do?
If you choose to sign on behalf of your dependent to participate in this study, your dependent
will be asked five questions designed to elicit reminiscent responses. Questions will center on
significant persons or events in the participant’s life while growing up. During the live and
recorded musical conditions, the participant will be invited to join the student music therapist in
singing along to the four predetermined songs for the study. In total, your dependent’s
involvement in this study will last approximately 30 minutes for three separate sessions: non-
musical baseline conversation condition, live therapist delivered music condition, and original
artist recorded music condition.
Are any risks expected?
We do not anticipate any risks beyond those that would occur in everyday life, however potential
risks could include emotional discomfort from topics discussed during reminiscence by the
participant, as well as a possible risk of reputation from the audio recording component. To
reduce risks, staff members and the program director, Patricia Brady, will be notified
immediately if the participant experiences any emotional discomfort. In addition, identifiable
data (such as the participant’s voice and significant persons’ names) will be stripped from the
typed transcription. All audio recordings will be destroyed after 1 week to 6 months after the
recordings were taken.